This was the closest we’ve come to calling the police for assistance.
The neurologist called to say that we were denied a brain scan because our psychiatrist said it wasn’t necessary since she has him listed in her files as having Temper Dysregulation Disorder. It’s funny she has this listed in her file since she hasn’t communicated this to us and the diagnosis isn’t even official since it’s still under review with the American Psychiatric Association until it’s released in 2013. If you haven’t heard of this label before, this is the diagnosis they hope to use on kids who previously may have been labeled as bipolar. As our psychiatrist told me once, this future label will end the controversy on childhood bipolar illness (yeah, right).
I agree that this disorder looks like my son, but it’s only a limited view of him. It doesn’t take into account the voices he hears, the man he saw in our home that wasn’t there, his rapid cycling of sadness, his anxieties... need I go on.
When I explained to the neurologist that our psychiatrist is the last person that should make this decision because she’s already shown us that she isn’t properly informed with our son’s case, he said he would only give us a referral to a qualified person after we shared our feelings with our current psychiatrist because he didn’t want it to look bad. So now, I have to deal with office politics, pay more co-pays to tell a doctor that she isn’t meeting our needs before I’ll even get a decent referral.
In the meantime, I asked the neurologist to schedule us an appointment while we wait to convince our psychiatrist to approve the brain scan. Then I notified our psychiatrist’s office that we need to meet with her asap because we are unhappy with our son’s care. (and I’m bringing Dad as back up)
By the way, I was talking with my cousin who I mentioned in my previous post and it turns out that she was diagnosed with depression 10 years before the diabetes and final tumor diagnosis. This is why I need to make sure my son’s brain scans come out clean before I continue to treat with additional medications.
I still have a headache from the hit to my face and I’m ready to go to bed and end this rough day. As for my son, he asked me to sell him so that our family would be happy with him gone, then asked me to read to him the journal entry of the day he was born, he needed to be reassured that I still loved him.
I do... and I always will.