After my son left the room, I asked our therapist if he’s heard of this before and what causes it. Our therapist said, “Yes, I’ve heard of this, it sometimes happens to women while they’re being raped. It’s the brain’s way of defending itself, a form of detachment.”
Ok, so I ask him why this is happening to my son since he’s not under any kind of stress or trauma when this happens, he’s just playing with legos!
Our therapist responds with, “I don’t know why this is happening, but let’s not pay it any attention.”
GGGGGGRRRRRRR!!!!!!!!!! ( That’s me screaming inside my head)
I’m so mad about this, in fact, I didn’t even want to blog about this until today since it made me so mad. I can even feel my Mama Bear blood boiling as I type about it now.
As far as I know, if a therapist doesn’t know the answer to a question, they can research the question with all those books behind them. I understand there may not be an answer, but just telling me to “not pay it any attention” doesn’t cut it!
It makes me feel like he’s done dealing with my son. My last call to him yesterday wasn’t anymore encouraging. As we discussed my son’s destructive behavior, our therapist said that he can choose to let out his anger in another way, he can just do push ups.
Yeah, try telling that to my son when he’s in a rage... “hey son, give me 30, now hit the floor!”
Yeah... right, sounds like a winner idea.
When I told my son about this, he just laughed and said, “if I had to do push ups I would just get more angry”.
So, like so many other moms fighting for their children, I researched this symptom on my own. Thanks to one mom on a forum, I was given the suggestion to look into “Alice in Wonderland Syndrome”. This is neurological condition which affects human perception. Sufferers may experience confusion of the size and shape of their body or see objects with the wrong size and/or find that perspective is incorrect. Hmmm... sounds familiar!
This is a temporary condition that is often associated with migraines, brain tumors and the use of psychoactive drugs. It’s also present at the beginning of Epstein-Barr Virus (mononucleosis). With my son just recently having a bad virus, mono may be the explanation. But since he’s mentioned feeling something similar in the past, it may also be the medications. The final question I have is the tumor.
Ok, you’re probably saying to yourself... this is just the reason why parents shouldn’t research things on their own.
But let me first say, I do not believe my son has a tumor. However, it brings up a question that’s never been answered. After 3 years of treatment through our HMO, a handful of different medications and still no official diagnosis, our doctors have never looked at my son’s brain. We’ve never had any scans to check and see that he doesn’t have any physical problems.
Could there be something going on inside his brain that would require different treatment. In my own life, I’ve seen this same scenario. My cousin was diagnosed with diabetes. But after my cousin researched on her own and pushed her doctors to run certain tests, she was later diagnosed with a tumor on her pituitary gland. After surgery and treatment, she’s now a cancer survivor and living a healthy life. I always think, what if she’d never pushed her doctors to run more tests?
So, though I don’t expect my son to have cancer, I do feel it’s my responsibility to make sure that we’re thorough in my son’s treatment. Which for me, requires looking inside his brain, not just telling him to take drugs and do push ups.
So today I begin this fight. I’m meeting with our pediatrician and requesting a referral to a neurologist.
Watch out, Mama Bear is coming!