Thursday, September 2, 2010

Success!

I only have a few minutes, but I wanted to update you on our meeting with our psychiatrist. I was able to tell her that I was unhappy with her care, explaining that I didn’t feel like she listens to me and dismisses our concerns.

For the first few minutes, she continued to cut me off, saying what she wanted to say without even listening to my questions, just moments before my husband stepped in and asked her to stop cutting me off, she changed. It became obvious that she realized that she was doing the very thing we were complaining about. So then the listening began and she spent a lot of time answering our questions.

When we explained that we wanted an MRI to rule out any physical problems, she smiled and said “I agree, that’s a good idea.”

Yep... I was stumped by that response, so I asked her, “Then why did you tell the neurologist that the MRI wasn’t necessary, thus declining approval to have it done?”

She seemed surprised, then as we back tracked through the details she realized that she made an error when talking with the neurologist thinking he was just calling to talk about our son’s case, she also confirmed that it was a mistake that he was diagnosed with Temper Dysregulation Disorder (more on that later). In the end, all these mistakes were due to her not listening to the neurologist and just talking away... like she does with me.

So after an apology, she ordered the MRI! (I’m now doing a happy dance)

The neurology department just called and scheduled it to be done in a few weeks.

I guess it’s worth it to fight the fight!

10 comments:

  1. YEAH!!!! I am glad you were successful in talking with her. Now, maybe you guys can move forward in treatment!

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  2. By the way, I have had two MRI's in my life, so if your son wants to talk about it or has questions, just have him give me a call!

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  3. Hi,

    Im a first time commentor and found your blog the other day by pure luck/God. My son is 6, and it seems that he is in the process of being diagnosed with a "severe mood disorder" his therapist has referred him to a phyciatrist(sp) he had his first MAJOR episode ina store today, rage, kicking, screaming, threatening...manager was called, I really didnt know what to do as he wouldnt/couldnt stop...he finally crawled out and slowly walked to a wishing well in the mall where he threw ina coin and wished "to be good"...he used the exact words " I used all my good with grandma and grandpa today..I had nothing left" I feel like i am loseing my son, your blog ( I have read through most of it) has given me such insight, and some hope that its not my fault, he will get better its jsut going to take a while, I pray the mri turns out in your favor that your son is okay ( as in nothing that cant be cured) and that maybe it gives you some hint as to why he is wired the way he is.


    much love and many more comments to come,

    Tara

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  4. Hi Zena,
    Thank you so much for reading my blog. I happen to read some of yours the other day and I have to say I was hurting for you, you are an incredible survivor! I'm so sorry for all the pain you and your family have experienced.

    Your son's wish "to be good" is so sad to me, I've seen this in my son too, they know deep down that something is not right.

    My son has said the same words:
    "I've used all my good up..."

    It amazes me how our kids are able to articulate the same things, it's moments like those when I know that not only am I doing everything I can, but my son is doing all he can to get through the day.

    This is definitely NOT your fault, despite what the woman at the cash register says under her breath or the looks you get at the park. Our kids are truly sick and I hope someday they'll recover as their brains develops. My Psychiatrist explained that she has seen mood disorder cases in childhood get much better, some even develop and have very few symptoms as adults. I know that it could also get worse, but right now I'm holding on to the hope that my kid may get better someday. I hope you can find that hope too. (It's what gets us through the day, right?)

    So have you started medication yet with your son? Are you thinking of it?

    Thank you for your prayers and I look forward to hearing from you again!

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  5. YAHOO!!! Great news! I'm so happy that your psychiatrist ACTUALLY admitted her mistakes and turned it around. What an amazing day!

    Zena: I have a 6-year-old much like yours. He came home the other day and said he felt bad about the new kid at school and when I asked him why, he said, "because he's a really nice boy". Why would that make you feel bad? "Because I wish I could be a really nice boy like him". It almost made me cry. We've had rages in the middle of Target, too, and I've become really good at not caring what people think. I tell them he is sick and getting therapy. What else can you do? Keep a sense of humor and a bottle of wine nearby! Hang in there! You are not alone!

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  6. mamabear and Gina,

    Thankyou so much for your encouraging words, Yesterday was very very difficult, a women in the dressing room kept trying to ask him what was wrong and he just kept screaming, "and you" he said "GET AWAY FROM ME" as he began to lunge at her, I had to quickly get in the way and get kicked in the gut, I tried telling her to just go that he is not well, but I guess to most people it just looks like a bratty child throwing some type of horriable fit, and since my other 2 children have seen it more times then I can count they really werent phased by his behavior ( as they had my mother to watch them)...he never really got the chance yesterday to fully "come down " from the rage so he was on edge until I was able to get him home...and finally after another hour, let him use the computer to listen to his favorite band, then at nearly midnight as he was still awake he begged for medicine to help him sleep, ofcourse I had none, gave him benadryl and eventually he fell asleep.

    As for the meds, His therapist brought it up on wednesday, he is going to be evaluated but the evaluation process takes 6-8 weeks (which Im glad of at least I know they will not just throw some pill at him and they will truely listen/watch his behavior and reactions...if they tell me he needs medication, reluctantly I will give it to him, he apparently needs something and if it would help me to get my son back, I would do it, it does make me uncomfortable, but hes more uncomfortable then I am, he deserves a chance to feel more "normal" so yes I would do it...Im not really sure what they give to children...and they said that it might not be permanent....sigh...just want my son back...Im thinking of starting a seperate blog just about trying to save my son.

    Thankyou for reading my current one, yes things have been very very hard, but no one said life was meant to be easy.

    Love, Tara

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  7. YAY!!! I'm doing a happy dance with you :)

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