Sunday, October 10, 2010

Email Me!


I wanted to let you know that I’ve added an email that you can use to get in touch with me. I know some of you may want to ask questions or share your stories but aren’t comfortable with making a public post, so I thought this may be helpful. Please no solicitors or mean messages! I look forward to hearing from you.



11 comments:

  1. Good! I often like to email instead of comment - you can get much more in depth.

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  2. I was watching your story and I can relate sooo much to your story. I have been living the same nightmare. My son has tourette syndrome and rage. When he was 16, I had him hospitalized because he had visions of killing his father. From there they put him in jail instead of getting the help that he needed. I also understand what your son is going through because I have tourette syndrome and when I was a child I also had extreme rage. It was like a switch that couldn't be turned off. I couldn't stop the rage..it took over. The good thing is that I grew out of it.

    My son also has been on medication since he was three.

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  3. Just wanted to say thank you. You have helped me to be able to not only better explain to friends what I am going through with my son but to also make them realize that there are other people with children like mine out there who struggle every day like i do. Most importantly in my struggle to make people understand that this is not just some 'quirk' or 'phase' he is going through - to make them understand the seriousness of this illness - I have been able to repeat this comment to so many (I may be paraphrasing here) "when your child has cancer they bring you casseroles...when your child has a mood disorder they run in the other direction". I have never heard the pain and suffering we go through (as the parents and the child) better explained. I think I have stumped many a parent with that one who thought they could empathize (oh I know what you're going through....) until I throw that one at them. My poor little guy has lost a couple of friends because of this disorder and it angers me so much. Why can't people be more empathetic to mental illness - they would be if I told them my child had leukemia.......RIGHT?????
    Thank you again.

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  4. Anonymous-Thank you so much for writing to me, I love to hear that blogging my life is helpful to others. I totally understand the frustration of facing people who don't understand what we're going through and how other's can minimize our challenges. I also have struggled with society's view of kids with mental illness. We see so much love and support for those children under going treatment with cancer, yet our families have to defend the use of medication, while being judged as being bad parents. It sure is difficult isn't it! I wish I could find a way to help stop this stigma!

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  5. Question

    Has your son every had an MRI? EEG?
    We've been through almost entirely the same thing you have gone through for almost a year now. MY daughter is 8.5 years old.

    In September she had an EEG done (I pushed for it)because of her aggressive episodes, which always occurred out of the blue, or else with a minor frustration with her two younger sisters(6, 4). Her first EEG came back abnormal,spikes in the left frontal lobe area. Her second EEG normal...they referred us to a psychiatrist and basically closed the door on neurology for her. She is currently on an antipsychotic, risperidone.

    The only question I have is last Christmas she had a bad tumble on a sledding hill, she hurt her head but we never followed up any care because she seemed fine. Her first rage attack happened in January and then February, since then they have accumulated and increased in severity and frequency. She has moments of psychosis while she has her rages.

    Has your son ever had an MRI or EEG? Or a head injury?
    I also feel that we as a family are hindered by the fact that this is considered a mental illness and I too feel that people shy away from it. We are guarded with her playmates' mothers, because I understand the stigma with mental illness.

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    Replies
    1. Yes, he had an MRI, here is the link to the results:
      http://www.blogger.com/blogger.g?blogID=258673155579544284#editor/target=post;postID=578300315544648637

      Basically, it looked normal. As for head injuries, no we haven't had that. He did take and antibiotic for a few years to prevent kidney infections due to a birth defect, I have wondered if that did something. But I also have mental illness in the family tree.

      I understand how you feel hindered by the stigma, I deal with this too, it makes the whole thing harder!

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  6. I have been following your blog for months. I have a 14 year son, a 10 year old son, and a 6 year old daughter. My 10 year old has been struggling for a long time and a year ago was diagnosed ADHD and mood disorder (they suspect bi polar). In October he had his first stay in a mental health facility. We are trying to get him stable on meds he is taking 800 mg Seroquel daily. We currently have a 504 but I think he needs an IEP with the study skills class as homework troubles seem to cause huge rages.

    His doctor had resently told me the next time he his harming us or destroying property to call the police and have him arrested....as I'm watching the video of Lois DeMott I'm just sobbing. I know that getting my son in the system will not help him. It's so scary! I'm so sad for that mother and her son. I hope that the laws are changed soon for everyone going through this now and for us, as the possibilty to be on that same road is very real.

    I want to also thank you for doing this blog. My husband and I have felt very alone going thru this but I often come and read your blog and it helps me stay strong.

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    1. Thank you so much for following my blog, I’m so glad it’s helping you stay strong!

      I understand your concerns about calling the police, I have the same fear of it turning bad in the end. It is such a difficult call to make, I know some have had to make the call to stay safe. I’m so glad that we haven't crossed that step yet, but I know the puberty years may take us to that edge if things get out of control. As my kid gets stronger, it gets harder to handle on my own. Thankfully I’ve been able to call my husband home from work when in a tough spot.

      I had a similar response to the video of Lois DeMott, you see a mom who has done everything she can to help her child and things still go terribly wrong. It is heartbreaking to say the least.

      I hope you find stability soon, it will make a world of difference and give your family a period to restore their strength and build healthy relationships. I’ll say a prayer for you tonight. I hope to hear from you again!

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  7. Read some of my blog posts on medications in the US.

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