I thought he came across very professional, he started out the appointment by talking to our son alone before we gave him input, which I loved since I think it gave him a sense of our son prior to our disclosure. During this time he played catch with him in the office and asked questions and played word games.
Once we met with the doctor, we were able to share videos and go over lists of behaviors and symptoms. he then asked a lot of questions about his development from birth on.
At the end of the appointment, he shared that it was important to stop these episodes of seeing monsters, but he wasn’t sure what was causing it, he did mention that maybe he was having anxiety attacks, but it’s really hard to know.
When I asked him what diagnosis fit my son, he mentioned that this could be bipolar disorder and acknowledged that there was a lot of controversy in the medical field about it occurring in children and that it was also possible he could have a mood disregulation disorder (the new diagnosis that will be released in 2013). Either way, the treatment with medications is the same. He said that it’s really hard to tell in children what’s causing all of this, but what we do know is that there is something wrong and it’s affecting his development as well as our whole family and that we need to treat this with medication and therapy. But in the end, when it came to knowing what my son may have, he said “we just don’t know.”
So I think I need to come to terms with the fact that what we are dealing with is not fully understood by doctors yet. There’s still so much more research needed and a lot of patience on my side, because only time will tell, we just have to wait and see what lays ahead when it comes to looking at his future. In the meantime, he said we need to focus on today and getting him through December. We just treat the symptoms he has and use therapy to help him cope with his illness and feel good about the boy he is.
As for the medication, right now he wants to give the previous dose increase of Trileptal some more time to take full affect and didn’t want to add a new medication right away. Then we’ll meet again in January and see where things are. In the future, he said we could look at adding Risperdal or going a new direction by trying to tackle the anxiety more with an antidepressant. Either way, there’s risks to both, but he mentioned it’s really trial and error, there’s no direct path and it’s different for every kid.
Before the session was over, he made the point to encourage us that in our son’s lifetime, there will be better treatments available.
At the end of the appointment, my son said that he like him and didn’t want to go back to our old doctor. I’m glad that he didn’t rush into any new medications, but wanted to take a little time with us before making that decision. I think we all have a feeling of trust with him and that’s a good place to start.