Are You Kidding Me!!!
LOL! I can’t believe you don’t believe I’m real. I’m not even a writer. I’m just a mom who has been living in hell for the past 3 years trying to help my son. The only reason I’m anonymous is because I’m trying to protect my son’s identity. He’s only 10 years old and I don’t feel comfortable using his name publicly. He’s aware that I write it anonymously and has given me permission to share his story. As for my cheap photos, yeah they may look cheap, but that’s because I’m writing my blog for free and I use a website that offers free photos for use in blogs, that’s what real bloggers do. If I was being paid to write on behalf of CABF, the first thing I would do is request access to some decent photos.
I started my blog because I was feeling completely alone, I couldn’t find anyone who had the answers to my questions or who could offer me support for what we we’re going through. If you read all 238 posts over the last 18 months, you can’t in anyway deny that I’m a real person. I’ve asked all the tough questions, cried over my fears and the challenges we’ve gone through. Not every experience with medication has been positive, that’s what makes this whole experience suck, our kids face a medical community that doesn’t have all the answers yet. In fact, I just went to Standard this past weekend in search of more answers by asking researchers the questions face-to-face. But just because we don’t have all the answers to our child’s illness, doesn’t make their illness or their family less real. We are real people, with no agenda other than to have society stop judging us and our children and be kind enough to offer us support like the way you do for children with cancer.
My friend’s son had a brain tumor and she too had to make tough decisions with medication and treatment options. Even tough he’s now in remission, she still faces the concerns of the long term effects of those meds, but she needed to use them to save his life. This is very similar to our own experience. I wish my son didn’t have to take any medication, but after having to lock up all the knives in our home because our son wanted to stab himself, after suffering my own bodily harm from my son going into rages and attacking me or seeing my son beg for the doctor to give him medicine to help stop the bad side of his brain from taking over the good side, medication became necessary. And just like my friend, we’re concerned about the long term use of these meds, that’s why we reach out to other parents, doctors and researchers. We want what’s best for our child, we are trying to save their life.
Every word I write is real and the quotes above are from my son’s mouth. I wish this wasn’t my life, I wish that my son could have his life back and we are working on that. I wish so much that my blog was fake, but unfortunately, I am real.
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Link to the conversation (scroll to the bottom):